Tuesday, February 12, 2013

Heart stuff

I haven't been doing too well with spreading the CHD awareness this year :(

Since CHD is a HUGE part of our lives, it seems strange to me that more people don't know about it.  But in all reality, it shouldn't because when we were trying to conceive both our children we didn't even know a problem could occur with the heart.

I read a heart auntie's blog on a regular basis and she is Great about spreading the word during CHD awareness week and she made a great statement about being angry that people say they are not worried about their children being born with a heart problem because it doesn't run in the family.  We are all here to say that it doesn't matter - ANYONE can have a baby with CHD.  
I entered one of her contests & WON!  Aine will be receiving a bunch of bows for her glass holders - so I'll be showing them off once we get them.  (ok - so that was a little side note, because I won & you should check out her blog and ask her some questions for a chance to win a necklace).  But off my side note - one of the messages I sent her added to her comment on her blog.

The biggest thing that makes me cringe - so.....   when is she (Aine) going to get better?  When is this going to be All over.  Um.... Never!  Aine will always have to be careful with what she does, Aine will always have to have her heart checked - by a specialist, Aine will always have to be careful with what she eats, drinks, plays, etc, etc, etc.  She will also Always need to have continued surgeries, physical therapists, etc, etc, etc.  Appointments are our norm, pokes & prodes are our norm and now - casting is our norm.

So....  Why do we all flood everyone with information everyday & push it even more during this week?  So that babies that need the extra help will get it.


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