Sunday, March 3, 2019

It has been a crazy couple of months!!

Aine and I traveled to Rochester to meet with some Dr's about her height and weight.  I was a great visit with lots of learning.   Due to this visit we will be returning to Rochester to do an inpatient food change.  On a normal basis I would do the food switch at home, but this time is different; Aine has some values that are extremely low and the food switch could cause Refeeding Syndrome.   This is dangerous so they want to have her under strict supervision during the change over.
Once the switch is done, we will know if she is small stature because of DiGeorge Syndrome, her heart, or the food that she has been on.

Once this is done, Aine will see about her hearing and vision  (we know both are affected, but it is time to get things checked and I'm guessing get new ear molds because hers are the original set).

Liam has successfully earned his Black Belt and Shawn is working towards his!  Aine and I are both purple belts and will be back at training once the weather warms up and her food is switched.

Aine has also started dance class and will have a rehearsal in June.

We are absolutely sick of the weather and want it to warm up (we can deal with the snow - just not the cold)

Time to get treatments going!

Have a great day!!!