If you haven't read lots and lot part one, please do so before reading this one,
For some reason I couldn't post anymore to the first one.

So.. In talking to Aine's ENT, he said it is not common for a child to go backwards int heir swallowing ability, but it has been reported, so we will move forward with the therapies and see what happens.  No promises, no false lights at the end of the tunnel - just - try and see.

There are also a ton of unanswered questions which will hopefully come to light soon.
In a brain MRI, the damage that I feared became a reality.  Due to the lack of oxygen she does have grey matter, which could or could not be causing some of her delays - we may or may never find out the these answers.

During this MRI it was also discovered that there is probably a fusion between C2 and C3 which would be a sign of KFS.  They want to wait until she is older to determine if it is going to pose any problems for her.  KFS would answer many of the questions that have arisen about Aine.

And.... During all this, Aine has become self destructive.  If you see her forehead with scars or scabs on it, it is because she has done that - for some reason - unknown to us.  We are working on finding out why she is doing it, but until then the least amount of focus that is put towards the marks the better.

Liam has started his regression stage.  I was hoping that we were going to be the lucky ones that didn't have to go through it, but that sadly is not going to be the case.  He will throw tantrums, hit, kick, and cry.  We are working on it and it is getting better, but we still have our bad days.

We again ask for patience if we don't get back to you or don't call.  We think about everyone all the time and wish and pray that you are doing well but as you can see time is getting the best if us.  But this being said, don't hesitate to call, drop a line via FB, Pinterest, text, or any other way you prefer.  We Love to hear from you and appreciate it.

Now....  I must be a broken record.
If you are sick or have been around anyone that is sick.  PLEASE Do Not Visit.
With everything Aine has had to go through in the last couple months I want her to be home for Christmas.  She got to see Santa today and told him she was a good girl (she has been a GREAT girl) and that she would love to be surprised with something from him.

During the cold and flu season, if you are healthy and want to visit, you MUST have your flu shot.
If you are coming her, washing your hands upon entering, removing your shoes, and being ok with vinegar smell are a necessity also.

We again appreciate your understanding.

The Casey's

I would also like to send prayers out to some heart families that will be celebrating without their loved ones this year.
Baby Joy and Baby Zachary have been called back to celebrate Christmas in heaven this year.
We send love and prayers to their families.