Monday, April 11, 2016

The kids have been rocking it!!!

Besides the dreaded Strep throat (Liam), the kids have been pretty healthy.

They have been competing in karate and loving every minutes of it.
Liam went to Chicago with Shawn and did really well.  He competed on a raised platform and wasn't bothered by it at all.
Both kids competed at that karate cup and did fantastic!  Aine competed with Nunchuck princess for the first time and was surrounded by a huge crowd.

Liam is close to the end of his 1st grade year and will be moving to a new school next year where he will complete grades 2-5.

We are working with the school to figure out what the best thing for Aine is concerning school.

Aine had a cardiology appointment that went well.  Her pressures are remaining similar her conduit is still working, and she looks healthier than previous appointments :)

We still have questions about her size, but that is currently on the back burner because there are more pressing items that need to be figured out first.  Some of them are: what is causing the bradycardia (slow heart rate), what is causing appearing and disappearing rash, does she have immunity to certain things (chicken pox is the biggest), how are her hips and pelvic bone, how is her GERD going and is it affecting her heart?  There are many other things that we are working on figuring out, but this will give you an idea. 

We finished our weekend going to the Relentless kickoff which was a Huge success!  I was able to meet Hannah, who is the little girl I have been matched with to represent at the Big event coming up in July.  Following is the link to my FirstGiving page:
http://www.firstgiving.com/fundraiser/nicole-casey-3/relentless2016

Thank you for your continued prayers, support, and good wishes!  They mean the world to us!!

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