Aine has been given a really cool honor!
She has been paired up with a powerlifter who will be representing her in the March 2015 Relentless event!
We have started talking to Nomg online who will be her power lifter for the event and are excited for the day that we get to meet him in person.
One reason we are excited for Aine to meet Nomg in person is because she was really amazed when she saw the freak show move a fire truck at a previous event we were at, so I can only imagine the look of amazement on her face when she knows someone who is up on the stage!
Another reason we are excited is because this event will benefit soo many people - kids and adults alike. The Relentless Team and Hope Kids are working together to raise money for the program!
Hope Kids has been Great for us. We have been able to see movies, go to plays, and spend time at 5k & Kids walks events while not having to worry (too much) about miss Aine getting some yucky bug :)
If you want to find out more about Relentless 2015, you can follow this link or contact me using the contact me button on the side :)
http://www.firstgiving.com/fundraiser/NomgTerry/relentless2015
I hope you are having a WONDERFUL week and have a Great weekend!!!
Friday, January 16, 2015
Monday, November 3, 2014
SOOO Big!!!!
I have been waiting to post this until it became a reality in my head.
Aine TOOK a step ALL on her own!!!
Aine TOOK a step ALL on her own!!!
Wednesday, October 29, 2014
Speech apraxia
Lets just be blunt.
Speech Apraxia S***S!!!
There are times when Aine can tell you what she wants, there are other times she can only cry. At those times, the only thing I can do is try not to cry myself.
We have and are working with specialists to help Aine be able to communicate to the best of her abilities as well as being given the gift of including it with her hippo therapy. All these combined has given Aine the strength and confidence to work through us not understanding her. School is getting used to her dynovox, we continue to work on updating it, and making it better for her when she just can't get her speech or lips to work.
However! While resting today the most wonderful sounds came out of her mouth!
Mickey Mouse clubhouse, come inside its fun inside.
And.... It was clear as day!
Can we say tears of joy from this momma! Oh yes we can!!!!
She may not be able to say it in an hour, but her tiny voice will repeat in my head while she is trying :)
Speech Apraxia S***S!!!
There are times when Aine can tell you what she wants, there are other times she can only cry. At those times, the only thing I can do is try not to cry myself.
We have and are working with specialists to help Aine be able to communicate to the best of her abilities as well as being given the gift of including it with her hippo therapy. All these combined has given Aine the strength and confidence to work through us not understanding her. School is getting used to her dynovox, we continue to work on updating it, and making it better for her when she just can't get her speech or lips to work.
However! While resting today the most wonderful sounds came out of her mouth!
Mickey Mouse clubhouse, come inside its fun inside.
And.... It was clear as day!
Can we say tears of joy from this momma! Oh yes we can!!!!
She may not be able to say it in an hour, but her tiny voice will repeat in my head while she is trying :)
Tuesday, October 28, 2014
In the beginning of the school year everyone asked me what I was going to do with all my free time.
I just laughed, free time?.? What's that?
Now, as the weeks go by and Aine's para gets more comfortable with all the signs she needs to watch for I find myself at Caribou anxiously waiting for the time to tick by, reconfiguring a long overdue messy phone and Ipad. Downloading things I think will come in handy as well as think about what my kids are doing in their own little worlds. Because I will never truely know what they are doing, it's their time not mine, and they are growing up.
As Shawn has told me before, I should be happy that they will wave to me and say goodbye without a tear, it's good that they cried in the beginning when it was time to leave the fun and friends for the day. I agree, but it doesn't always help when that pit starts to hold the tears while thinking about how lucky I am to have my little family. Growing strong and dependent on themselves while still needing me when they get a bump or bruise.
While all this is happening, I am seeing that a little free time is something that could happen, even if it is at caribou or mocha monkey twice a week because I can't be that far away from the kids :). So when I was given a gift to help myself (maybe just to support my up and coming fancy coffee kicks twice a week :) ), I accepted. I was gifted a site where I will be selling candles with jewelry inside. I've always loved looking at them and have wanted to see what they were all about. I'm hoping that this will fill some of the "free time" that is giving me that pit in my stomach.
Feel free to check it out and ask any questions :)
Http://www.jewelryincandles.com/store/nicolecasey
Saturday, October 18, 2014
Tons to post!
Tons to post, forget to post, time goes by :(
We have been super busy lately.
Liam is in swimming, horse back riding, and kindergarten!
Which is crazy to think about.
Wasn't he just 3?
Aine is in swimming, horseback therapy, and preschool!
Wait! Wasn't she just born?...
There have been some weddings in our families, some coming up, some babies in the family, and some more coming up. Birthdays, anniversaries, and family events have come and gone.
Right now though?
Well, we are all working on getting over something, and it is affecting all of us differently. Liam seems the least affected and is having a grand time playing trains.
Shawn is tired and stuffy. I have headaches, body aches, stuffy nose, and more.
Aine - I wish I knew what she felt. She doesn't know how to express herself to I don't know except that she feels yucky :(
But to not dwell on the negative :)
Liam had conferences and he is doing Wonderful in school. The teacher loves having him in class, he is compassionate to others, and have a love of learning :).
Swimming is going awesome also! He is learning how to side breath and is doing a really good job at it, swimming half the pool!
Horseback riding is amazing also! He went from two side walkers to one, to just a lead person who will soon be removed and he will be leading the horse by himself.
Aine has gone to school 3 days! We've had to pull her because of live vaccines and illness, but she has loved the times she has been there!
Horse therapy is also going great! She is steering the horse (with some assistance), stopping, starting, and mounting (all with assistance) as well as working on her speech! She is in a saddle and using the reins!
There is more to update on, but this is a beginning!
Have a great weekend!!!
We have been super busy lately.
Liam is in swimming, horse back riding, and kindergarten!
Which is crazy to think about.
Wasn't he just 3?
Aine is in swimming, horseback therapy, and preschool!
Wait! Wasn't she just born?...
There have been some weddings in our families, some coming up, some babies in the family, and some more coming up. Birthdays, anniversaries, and family events have come and gone.
Right now though?
Well, we are all working on getting over something, and it is affecting all of us differently. Liam seems the least affected and is having a grand time playing trains.
Shawn is tired and stuffy. I have headaches, body aches, stuffy nose, and more.
Aine - I wish I knew what she felt. She doesn't know how to express herself to I don't know except that she feels yucky :(
But to not dwell on the negative :)
Liam had conferences and he is doing Wonderful in school. The teacher loves having him in class, he is compassionate to others, and have a love of learning :).
Swimming is going awesome also! He is learning how to side breath and is doing a really good job at it, swimming half the pool!
Horseback riding is amazing also! He went from two side walkers to one, to just a lead person who will soon be removed and he will be leading the horse by himself.
Aine has gone to school 3 days! We've had to pull her because of live vaccines and illness, but she has loved the times she has been there!
Horse therapy is also going great! She is steering the horse (with some assistance), stopping, starting, and mounting (all with assistance) as well as working on her speech! She is in a saddle and using the reins!
There is more to update on, but this is a beginning!
Have a great weekend!!!
Friday, July 4, 2014
Happy 4th of July!!!!
We would like to wish everyone a safe and happy fourth!
We went for a bike ride earlier this morning (Liam is working on riding his 2 wheel bike because he wants a motorcycle). And we have so far spent the rest of the day going on missions and checking out the garden.
Shawn is going to grill tonight (can't wait!!) and we will see if we can see any fireworks from the house.
We also are excited because we got chosen to be the featured family on Coles Foundation.
We just started with them, so there isn't many journal entries, but feel free to check it out! There are some cute pictures that haven't been posted here :)
http://www.colespages.org/
Again Happy 4th & be safe!!!
We went for a bike ride earlier this morning (Liam is working on riding his 2 wheel bike because he wants a motorcycle). And we have so far spent the rest of the day going on missions and checking out the garden.
Shawn is going to grill tonight (can't wait!!) and we will see if we can see any fireworks from the house.
We also are excited because we got chosen to be the featured family on Coles Foundation.
We just started with them, so there isn't many journal entries, but feel free to check it out! There are some cute pictures that haven't been posted here :)
http://www.colespages.org/
Again Happy 4th & be safe!!!
Thursday, June 5, 2014
Loss
I have come to realize in the last months that loss, no matter how big or small is difficult to deal with.
In the last couple months we have lost a lot, which has become hard for me to deal with, making it hard for me to keep up with our blog. This in itself makes me sad because I love looking back and seeing all the cool things my kids have done. That they don't just do medical things.
We had a medical student come into our lives to see what it is like to live with a medically complex child. She was fun to talk to, always had a smile on her face, and enjoyed being around the kids. We tried to show her many sides of our lives before we had to say the inevitable good bye.
The kids are getting older, which means they are moving on to different things. Aine had to say good bye to gymnastics because of her hyper mobility, Liam said good bye to his first teacher, Aine said good bye to the birth to 3 program, I have had to start coming to terms and say good bye to half days with Liam, and having to say good bye to Aine and leave her in the care of others for 2 hours twice a week.
We have had to say good bye to an awesome delivery guy as today is his last day because he is moving. As strange as it may seem to some, you become friends with the people who deliver you child's medical items, take their orders, make their appointments, and check them onto their appointments, they almost become an extension of your medical family.
We have had to say good bye to people that we have never met before, only talked to on the phone.
We have said good bye to our cat.
We have said good bye to a pretty cool aunt, who I wish the kids could have spent more time with. I learned a lot from her when I was little and got a ton of creative ideas from her.
We have said good bye to shoes, books, and other misc treasures (it can be rough being a kid at times).
Through all this, the small things have started to look like big things. The future looks bright, but the future good byes create a heavy heart because they will be coming too soon.
I have made a promise to myself that I will catch up on our blog so the kids can see the cool stuff they got to do, ballets, football camp, horse back riding, plays, and the list goes on.
Because, that is also what the past few months have brought us. And the future will only bring us more happiness.
In the last couple months we have lost a lot, which has become hard for me to deal with, making it hard for me to keep up with our blog. This in itself makes me sad because I love looking back and seeing all the cool things my kids have done. That they don't just do medical things.
We had a medical student come into our lives to see what it is like to live with a medically complex child. She was fun to talk to, always had a smile on her face, and enjoyed being around the kids. We tried to show her many sides of our lives before we had to say the inevitable good bye.
The kids are getting older, which means they are moving on to different things. Aine had to say good bye to gymnastics because of her hyper mobility, Liam said good bye to his first teacher, Aine said good bye to the birth to 3 program, I have had to start coming to terms and say good bye to half days with Liam, and having to say good bye to Aine and leave her in the care of others for 2 hours twice a week.
We have had to say good bye to an awesome delivery guy as today is his last day because he is moving. As strange as it may seem to some, you become friends with the people who deliver you child's medical items, take their orders, make their appointments, and check them onto their appointments, they almost become an extension of your medical family.
We have had to say good bye to people that we have never met before, only talked to on the phone.
We have said good bye to our cat.
We have said good bye to a pretty cool aunt, who I wish the kids could have spent more time with. I learned a lot from her when I was little and got a ton of creative ideas from her.
We have said good bye to shoes, books, and other misc treasures (it can be rough being a kid at times).
Through all this, the small things have started to look like big things. The future looks bright, but the future good byes create a heavy heart because they will be coming too soon.
I have made a promise to myself that I will catch up on our blog so the kids can see the cool stuff they got to do, ballets, football camp, horse back riding, plays, and the list goes on.
Because, that is also what the past few months have brought us. And the future will only bring us more happiness.
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